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All prepped and ready for surgery. Life with endometriosis, fibromyalgia, interstitial cystitis and pelvic congestion syndrome has not been easy. I'm trying to learn to speak out about these conditions more to help with awareness. This is hard for me to be open about and so public with, I tend to just share other people's stories because I'm scared of the outcome from sharing my stories. We need more attention to these conditions and better treatment options. Without awaren ... ess, this will be difficult to get. I pray that one day there will be a cure.... not just continuous "bandaid surgery" as we call it. I am so thankful for the support system that I have in Colorado now to help me through, along with the wonderful support and love that I still get from everyone back home. Coworkers, friends, family.... everyone has had to witness me in pain on some level at some point. My biggest fear was that I would not be able to hide this pain at work anymore. Unfortunately, my biggest fear came true. About a year ago I was caught crawling and screaming down the hallway at work. I say "caught" because I would have done anything to avoid anyone from seeing me this way. I was carried to the car and driven to the hospital where I was given pain meds and sent home. My work was absolutely amazing and went above and beyond to help in anyway they could. I'm so thankful. Unfortunately, I have too many stories like this one...first time my sister in law came to meet the family, during lunch in my High school cafeteria, during a Skype call with my ex husband while in Afghanistan, during thanksgiving when friends and family were in town, while I was driving home from work, while I was driving to work.... edgy style wears for prom and formal party
I get anxiety if I know the pain is coming. It gets so bad sometimes that the pain from burning my skin from a bare heating pad is worth dealing with to help ease the endometriosis pain. I'm hopeful that this surgery will give me at least 6 months pain free, if not longer. The only thing I know to do to make life worth the pain is to live the good moments to the fullest... Experiencing friends, family, love, travel and hope. Hope for better treatments for women in the future, hope for more attention to women's health, hope for less pain.
I am so unbelievably blessed with the life I have been given. It's hard to understand why I am one of many that suffer with this. However, I have been shown so much love and support, I have a good career, I have a great fiance, I have an amazing massive family and absolutely wonderful friends. Thank you for taking the time to read my story and share with anyone who can relate to these conditions. Endometriosis and me Endometriosis & Infertility Awareness Endo The Silence Endometriosis Awareness Endo What? April EndoAdvocate Barbara Endo Angel Jacobs

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